My name is Nupur Lalvani, I have been living with type 1 diabetes for the last 25 years and I’m from India.
I run a non-profit organisation called the Blue Circle Diabetes Foundation, which works in diabetes awareness and advocacy and is also the largest community-led support group for people living with all types of diabetes in India and we are a member of the Healthy India Alliance. This photo essay represents my thoughts woven around the four pillars of the Advocacy Agenda of People Living with NCDs, i.e.: Human rights and social justice; Prevention; Treatment, care and support; and Meaningful involvement.
1 November 2020
I choose to make a little difference
As a woman in a developing country, growing up with type 1 diabetes is a lot like walking the tightrope in circus clothes under the spotlight your entire life. Much like the photo, there are obvious cracks in our society and health system and gaping holes where there should be support and communities to ease the transition from a diagnosis into the new normal. The blue circle is considered the international symbol for diabetes and at Blue Circle Diabetes Foundation we endeavour to loop everyone into our circle of support and care. A character from a sci-fi series said, and I quote, “Some people choose to see the ugliness in this world. The disarray. I choose to see the beauty.” And may I add, I choose to make a little difference.
8 March 2020
The importance of community camaraderie
Two years into our community 5km runs, I never imagined a month without a gathering of friends from our local diabetes communities across our various chapters. It’s been over eight months now since we’ve met or jogged together. I realise the importance of community camaraderie for myself and others like me.
8 March 2020
Leave no one behind...
Everyone, including all marginalised groups deserve the right to health and a life of dignity, without stigma and loneliness. Loss of life due to a fractured public health system is absolutely unacceptable. People living with NCDs deserve humanity and access to affordable treatment, support and care to manage their conditions irrespective of race, caste, class, poverty etc. – An absence of these basics creates an insurmountable mental burden in addition to a chronic physical illness. Diabetes care, complications and depression are all closely linked. The Buddy Project Helpline at our NGO is an app-based, community led, multilingual peer support system for people living with diabetes and their caregivers.
1 September 2018
Not just survive, but strive
One of our goals as people living with NCDs (and generally as human beings) is not just to survive but also thrive, bloom and be the best versions of ourselves. With right and affordable treatment, care and support we can lead dignified lives and contribute to society. People living with NCDs deserve to be heard and must be involved in more than just tokenistic activities. Lived experiences and the voices of people living with NCDs need to be woven into policymaking and implementation. Over 77 million people in India live with various forms of diabetes and deserve a voice.
1 November 2020
The right to health is a human right
The right to health is a human right, especially relevant in the conversation around NCDs. Hope is being able to see that there is light despite all of the darkness.
With right and affordable treatment, care and support we can lead dignified lives and contribute to society. People living with NCDs deserve to be heard and must be involved in more than just tokenistic activities.
Nupur Lalvani, lived experience of Diabetes, India
About NCD DIARIES
The NCD Diaries use rich and immersive multimedia approaches to share lived experiences to drive change, using a public narrative framework.