What is the Global Charter on Meaningful Involvement of People Living with NCDs?

The ‘Global Charter on Meaningful Involvement of People Living with NCDs’, is based on the principle that people living with noncommunicable diseases (NCDs) – including care partners (also known as carers or care givers) – should be meaningfully involved in every step of decision-making that affects their lives.

The aim of the Global Charter is to have meaningful involvement of people living with NCDs embedded into organisational practices and mobilises all actors such as governments, international partners, private sector and civil society organisations.

The Global Charter calls on organisations and institutions to publicly endorse the Charter – and commit to fundamental principles and ten core strategies. These strategies will enable the meaningful involvement of people living with NCDs in decision-making at all levels - from the first stages of design, implementation to monitoring and evaluation and scale-up  of NCD policies, programmes and services.

 

My voice has to be counted: I don’t want others to think of solutions that address my challenges without my involvement.

Global Charter consultation participant

What is Meaningful Involvement?

Meaningful involvement is when organisations or institutions recognise the value of the lived experience and of the community. It ensures that people living with NCDs are actively involved in all aspects of the NCD response that affect them, including governance, policies, programmes, and services.

It requires an enabling environment to leverage this value and put people living with NCDs and communities at the centre to access their knowledge, skills, and expertise. It avoids tokenism by building a reciprocal relationship between organisations or institutions and people living with NCDs, as equal decision-making partners, whereby power is redistributed and shared, contributions are valued, and people living with NCDs also benefit from the experience of being involved.

Endorsers of the Global Charter

We, the organisations below, endorse this Global Charter and commit to meaningfully involving people living with NCDs and encourage others to do the same. We recognise that the meaningful involvement of people living with NCDs, community engagement and a strong civil society is indispensable to turning the tide on NCDs. Their contributions are integral to achieving broader health and sustainable development goals – at global, regional, national, and local levels.

  • Coalition MNT Togo Logo
  • DIabetes Portugal
  • Blue Circle Diabetes Foundation
  • Cameroon Civil Society NCD Alliance logo
  • Children's HeartLink logo
  • Chronic Disease Initiative for Africa
  • Eastern Med NCDA logo
  • Eminence Associates for Social Development logo
  • Framework Convention Alliance for Tobacco Control logo
  • Ghana NCD
  • Global Action on Men's Health
  • Global Liver Institute
  • Global Mental Health Peer Network
  • Healthy Caribbean Coalition
  • Healthy India Alliance (India NCD Alliance) logo
  • Healthy Philippines Alliance
  • HRIDAY logo
  • Indian Cancer Society, Delhi Branch
  • International Diabetes Logo
  • International Society on Thrombosis and Haemostasis logo
  • Intersectoral Forum to Fight NCDs in Brazil (ForumDCNTs)
  • Liga Argentina de Proteccion al Diabetico logo
  • Mexico Salud-Hable  logo
  • NCDA logo
  • NCD Alliance Kenya
  • Malawi NCD Alliance
  • Pallium logo
  • PAPO logo
  • Positive on Glucose logo
  • Rwanda NCDA Logo
  • SA NCD Alliance logo
  • SE Asia NCD Alliance Logo
  • Tanzania NCD Alliance logo
  • Vietnam NCD Alliance
  • Village Health Action logo
  • World Obesity