Hi, my name is Neema Mohamed and I am from Dar es Salaam, Tanzania. I have been living with sickle cell disease since I was ten years old. I have a positive mindset and I have devoted my life to advocacy for sickle cell disease and non-communicable diseases in general. Since joining the Tanzania NCDs Alliance, my journey started to be meaningful.

I'm sharing my story because I want the world to know that having sickle cell disease is not the end of the world. A sickle cell patient is a true warrior. You can achieve anything you want in life. The caregiver must support these patients and not deprive them of the chance to do better in life. We are the true warriors. We are going to break the sickle cell cycle.

Visual Diary

21 July 2022

Diagnosed with sickle cell disease

I was age 10 when I was diagnosed with sickle cell disease. The healthcare provider at the public clinic didn’t believe that I would have developed sickle cell as there’s no known history in my family, so she wasted a lot of time until my mother, a nurse, convinced her to examine me. After diagnosis, I started treatment immediately. My mother was there full-time, and that helped a lot. I began treatment, following a care regimen to reduce severe complications with the assistance of my mother, who played the role of caregiver and my healthcare provider at the same time.

neema_mohamed-photo_1-1120x532.jpg

I accept the reality that I have sickle cell disease, and I plead with sickle cell patients that when you accept your condition, the door to happiness and opportunity will start to open.

Visual Diary

21 July 2022

Journey as sickle cell warrior

My journey as a sickle cell warrior wasn't easy. A lot of pain due to severe crises, a lot of hospitalizations. I was a bright student but often couldn’t attend school. My expenses grew; I needed many supplements, and my mother couldn't always afford the basic medication, often taking out loans to pay for my hospital bills and medication. Luckily, I was able to access doctor’s visits for free through a project for sickle cell patients. My doctor helped a lot through advice on a balanced diet, natural medicine, and supplements.

neema_mohamed-photo_2-1120x532.jpg

This is my health passport, which is optimally utilized me a sickle cell patient and our healthcare providers as a tool to track my progress and a guide in the provision of my targeted care in the event of an emergency or clinic.

Visual Diary

21 July 2022

A blessing in disguise

I'm committed to sickle cell advocacy until the end of the world. A challenge we face as sickle cell warriors is receiving blood transfusions. Many people in Tanzania living with sickle cell or other NCDs such as cancer and kidney disease require blood transfusions, yet many die due to lack of access. Myself and another sickle cell warrior formed the Bone and Blood Foundation, which raises awareness in the community about the importance of donating blood. Our aim is to save lives and help our National Blood Transfusion Service reach their annual target.

neema_mohamed-photo_3-1120x532.jpg

Blood transfusion is a core treatment for people living with sickle cell disease and other NCDs. Every chance I get to raise awareness of sickle cell disease, I take a minute to remind the community that donating blood is important in saving people's lives.

Visual Diary

21 July 2022

We are strong together

Tanzania NCDA is an umbrella uniting us all; since joining, I've started seeing my condition in a different light. Shared NCD challenges included high treatment costs, delayed diagnosis, lack of access to treatment and counselling services, high transportation costs to health facilities, stigma, and healthcare professionals who are not well-equipped to care for NCDs. We provide education on NCD prevention and treatment to people living with NCDs, health professionals, caregivers, and local leaders, based on our own experience. This ensures that people living with NCDs have access to the right knowledge and services to manage their condition.

neema_mohamed-photo_4-1120x600.jpg

By providing education to the community on the effects of NCDs, the photo above was taken to commemorate a cancer day around the world, when we rejoiced over the news of a free cancer test.

Visual Diary

21 July 2022

My view and my voice

NCDs affect our daily lives in every regard, and thousands of Tanzanians lose their lives to NCDs every year. I call on the government, leaders, and other stakeholders to ensure a public awareness campaign in schools and communities on NCDs and their risk factors. Strengthen our primary health care facilities to ensure affordable essential medicines and provision of timely treatment. Develop and enforce laws, policies, and guidelines at all levels that protect people living with NCDs. Ensure affordable National Health Insurance for all.

neema_mohamed-photo_5-1120x532.jpg

A photo of me speaking on how NCDs can be prevented and treated in Tanzania.

NCD Diaries


Sickle cell disease will not stop me from achieving my dreams.

Neema Mohamed, lived experience of sickle cell disease, Tanzania

About NCD DIARIES

The NCD Diaries use rich and immersive multimedia approaches to share lived experiences to drive change, using a public narrative framework.

Explore NCD diaries

Visual Diary iconAnita Sabidi

Anita Sabidi

Written Diary iconWendy Reaser

Wendy Reaser

Written Diary iconTakwe Boniface Njecko

Takwe Boniface Njecko

Written Diary iconChitrika De Mel

Chitrika De Mel

Written Diary iconJoseph Rukelibuga

Joseph Rukelibuga

Visual Diary iconLucía Feito Allonca

Lucia Feito Allonca

Written Diary iconBrenda Chitindi

Brenda Chitindi

Podcast Diary iconChikhulupiliro Stanley Ng'ombe

Chikhulupiliro Stanley Ng'ombe

Visual Diary iconNeema Mohamed

Neema Mohamed

Visual Diary iconOduor Kevin Otieno

Oduor Kevin

Written Diary iconAshla Rani MP

Ashla Rani MP

The current theme is

My healthcare provider's impact on my NCD journey

View the Diaries