My name is Shifneez and I’m from Maldives. I was diagnosed at the age of two with Sickle-Beta Thalassaemia, an inherited blood disorder that was thought to be a childhood disease. Today I am 42 years old, mom of two and a patient advocate for Sickle cell and Thalassaemia.
My mission is to share my story living with sickle cell and stand up for my cause. Volunteering to raise awareness was my gateway to healing and I hope to continue to stand up for the empowerment of patients and parents, and win the battle against sickle cell disease and Thalassaemia for those suffering.
Every person has a story; you never know the possibilities that you will open up for others when you start to tell yours.
NCD Diaries
This is me, turning pain into purpose so you may find the strength to break the silence.
Aishath Shifneez Shakir, lived experience of sickle cell disease, Maldives
About NCD DIARIES
The NCD Diaries use rich and immersive multimedia approaches to share lived experiences to drive change, using a public narrative framework.
